SS    

What life is like     when you suffer from

      Sickle Cell Anemia...

  • He has gained only one pound in thelast year.
  • At 5 years old, he weighs only 30 lbs.  The doctors are concerned about his growth.
  • Nicholas isn't growing because his body is trying to survive and heal from the damaging effects of his disease.
  • He has to take a narcotic like oxycodone to help ease the extreme pain he is enduring when he has a pain crisis.  
  • Nicholas has been diagnosed with the most aggressive sickle cell disease.  He has the "SS Trait" which means his body produces around 90% sickle cells.  They live only 10-20 days.  His body has to constantly keep making new cells as the other ones die off so quickly.
  • In a normal person, blood cells last up to 120 days.  This is why Nicholas's body hasn't grown significantly in the last year.
  • This little boy has had numerous blood transfusions since his body is not able to make enough blood to survive.

Welcome

This site is dedicated to the fight I'm winning over Sickle Cell Anemia. I'll be sharing my thoughts, feelings and insights as I go through this journey. Please check back regularly for updates on my progress.  I also hope to help raise awareness about the disease. After all, I'm not alone--90,000 to 100,000 people in America are diagnosed with Sickle Cell Anemia.  Together, we can ensure better odds for future generations.  My journey to living free of Sickle Cell Anemia can be shared and inspire hope to all.

   

Hope & Support for Nicholas Hinkins
Bone Marrow Transplant Donation Website

Donate Now  Support Nick

About Nick

Nick is a loving little boy. Who suffers daily with this disease.  He's a loving child that  reaches out to everyone around him with a ready supply of hugs and kisses.  He has a smile that lights up the room.  He loves to listen to stories and play with his twin brother Christopher, whom he adores with all his heart.  They're so close that they try to do everything together--but often they can't because Nick's so terribly ill.

Financial and Medical Resources Are in Different Places

Right now, Nick and his family lives in Alaska, because in a tough economy, this is where his mother Michelle, can earn a living.  She also has extended family there whom she relies on.  Alaska is a terribly hard place for a child with Sickle Cell Anemia to live.  Playing outdoors in frigid temperatures will send him to the hospital for another "Extreme Pain Crisis".  He sits indoors most of the time watching his brother and friends play outside.  Not only that, medical resources near Nick's home are scarce.  His last episode in the hospital almost cost him his life.  He had acute chest syndrome which caused him to struggle with all his might to get enough oxygen in his lungs to survive.  Obviously this dangerous situation can't continue indefinitely.

Hope for Nick in Atlanta

The only possible cure for Sickle Cell Anemia is a Bone Marrow Transplant, but as the National Institutes of Health explains, most of the sickle cell suffers are not able to find matching donors.  Nick's twin brother Christopher is a perfect 100% match!  Chris's bone marrow can possible save Nicks life.  Such a rare and wonderful opportunity for a cure--its unthinkable that financial barriers could prevent Nick from benefiting from this one life-saving chance.


Nick’s Survival Depends on Donations

Bone marrow transplants are long, complex medical ordeals, but this procedure is Nick’s only hope for survival. His doctors estimate that the entire transplant process will require a full year, including numerous appointments for preparation, chemotherapy, transplant, recovery and rehabilitation. Saving Nick’s life will require the two boys to relocate to Atlanta for a year, while Michelle takes unpaid leave from her job to care for them there. Nick, Christopher and Michelle desperately need donations so they can make this one year move to Atlanta.  

What the donations will go towards:

Sustainment...Housing costs, living and medical  expenses in Atlanta.  The insurance company doesn't cover all the expenses for the BMT.  The hospital will provide the service but sustainment cost will come directly out of our pocket.  Donations will assist with helping sustain this family while we save Little Nicks Life  Why???  Due to the large size of Nick's family we can't stay at Ronald McDonald House.  A 4 member family maxium is allowed to reside there.

GOAL 50,000

40,000  _______


30,000  _______


20,000  _______


10,00    _______

7,500    _______

5,000   

2,500    _______

1,000    _______


Woo Hoo!!! Look at all your donations!!! Let's keep it going.  Please share the links and support.

We are so grateful and thankful for your donations!!!   Love  

Nick E Poo and Family

#teamhealnickhinkins

Let's see what we can do to help this lil fella out.

   ***Nick  E  Poo  Updates***

We're heading to Atlanta June 17-27th to Start the Bone Marrow Transplant process.  Nick will have an MRI done along with Ultrasounds and extensive blood work and transfusions. All your donations are helping turn this dream into a reality!!!  Thanks to all of Nick's friends for their support.  God is going to do it!  Please continue to pray for us. 





2014 06 15

2014 06 15

Go check out the San Francisco Bayview Newspaper online. They wrote a wonderful article about Little Nicholas.


http://sfbayview.com/2014/heal-nick-hinkins/

The ongoing intensity of medical procedures makes it impossible for Michelle to work during this period, and they need resources to travel to Atlanta, find lodgings near the hospital, and make ends meet for a year. Health insurance is essential, of course, but when lives are at stake, the actual medical expenses are only the beginning of the devastating costs that families must pay. Every day that Nicholas spends in Alaska is another day that delays his chance to be cured of this terrible disease. He only weighs 30 pounds at age 5, and with the amount of pain he suffers every day, life is a constant struggle. Financial help from generous donors is the only way that this brave little boy can win his courageous fight for survival. Readers can visit healnickhinkins.com to learn more about Nicholas and donate for this lifesaving procedure. Having a bone marrow transplant is the only hope for saving this little boy’s life, and his entire family is profoundly grateful for donations in any and all amounts.

Words cannot express the awe, humility and gratitude that Nick and his family feels for all the support, compassion and love.  Thank you!!!

How do you say thank you when your completely overwhelmed by such an immense display of support and generosity.  We've been having trouble fining words to articulate exactly how we feel because words just don't seem to cover it.  Knowing that there are so many who send positivity and love Nick's way Shows Alaskan's Love for all. 

Nick wants to Thank all his friends for their Prayers, Love, and Support across the World

(Yes we've received support from other Countries)

Olivi          Cynthia Edwards, Linda Pasters, Vera Williams, Alisha Daniels, Venice Simpson, Le Cupp, Joseph Horton, Jessie Davis, Kalahari Danjuma,

                James Spillane, ***Mo’min bdun-Noor***, Youngstown State University, Annabelle Parker, Tommy McMullins, Andre’Jacobs, Julie Veronick,        ***

                Susan Bernard, Judy Crosby, Jeremy Vancil, Nedra Oeder, Norton Gregory, Egzona Dobrova, Caleb, Haberkorn, Donna Georgi, Bobbie James,    Friends

                ***Chinook Video***, Margaret Bean, Dana Mach, Margaret Kugel, Janice Wyland, Ron McCallion, Brenda Zemba, ***Danny Fraizer***,           Who 

                Angelina Baklanov, Mary Mc ilmail, Linda Russell, Renee Oistad, Justin Charon, Paul Schilling, Moira Casey, Robin Flanagan, Sharon Padilla,    Donated 

                Christine Deacutis, Joan Coon, April Wisebaker, Melinda Peter, June Vezina, Scott McClure, ***Stacy Walker***, Stephanie Joannides,             Over        

                Michelle Edwards, Craig Kingsbury, Vickie Reese, Susie and Elijah Stafford, Loretta Englishbee, Sourath Khotprathoum, ***Martha Stramp***, $200.00

                Diane Brewer, Arne Krogh, Susan DeLoach, *** Remax Jon Rodriguez***, ***Huffman Family Dentistry***, ***Cook Inlet Mortuary***,            ***

                Glenn Ratcliff Jr., Jeanette Steward, Brandon Hinkins, Glenn Ratcliff Sr., Darius Hinkins, Alaska Bulls Basketball Team, Tammi McGriff,              

                Michael Bradley, Lakeside 3-11 CAN Jacksonville FL, Sherri McKennie-Aiken, Helen Aikman, Adlawan Family, Resty Stoute, Cheyoko Buagmgartner,

                Alicia Hinkins-Edwards, Isaiah & Mya Ratcliff, Courtney Hinkins, ***Stanley Ratcliff Jr.***, Abdul Shakur Olivia Yap,  Willie & Mary Ratcliff